Norske og internasjonale biomedisinske ME konferanser, seminarer og markeringer

På ME-feltet: I løpet av de siste årene, har økende biomedisinsk forskningsaktivitet og dertil antall forskningskonferanser og seminarer økt for den nevrologiske sykdommen Myalgisk Encefalopati (WHO ICD-10 G93.3).

Presentasjoner som blir gitt er også en unik mulighet for å lære mere om ME, hva som forskers på, hvem forsker på, samt foreløbige funn, hypoteser og resultater og veien videre på forskningsfeltet.

Bare det siste året (er nå i slutten av august 2019) har det vært gjennomført minst ni biomedisinske forskningskonferanser/seminarer/markeringer med skarpt fokus på Myalgisk Encefalopati (ME, G93.3), hvor av hele tre internasjonale store flerdagers konferanser i hhv Australia, England og USA i første halvår av 2019.

Open Medicine Foundation (OMF) Symposium, Stanford 29sept2018; Den årlige svenske Riksforeningen for ME-pasienter (RME) konferanser, Stockholm 17oktober2018; ME-foreningens åpne fagdag i Oslo 27november2018; Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019; En helsepolitisk biomedisinsk ME-konferanse på Stryn, 26-27 mars 2019; National Institutes of Health (NIH) Conference: Accelerating Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 4-5 april 2019; ME-dagen 12mai markering; Invest In ME Research London 31mai2019 og Harvard ME/CFS Symposium 8juni2019.

Dette innlegget/siden vil gi en «liten oversikt» over markeringer, seminarer og konferanser både her hjemme og utland.

Siden innlegget er langt og tungt har jeg valgt å dele det opp i flere, som «Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019» og «Monarkiske lands biomedisinske ME konferanser, seminarer og markeringer«, samt «Amerikanske biomedisinske ME konferanser, seminarer og markeringer» pr 23 august 2019.

MillionsMissing Stavanger 12mai2019

Program: Musikalsk innslag ved Kjell Arve Hestetun & Sven, Åpning ved Erin Sund, leder i LO Rogaland, Pasient appell: Ella 10 år på vegne av Emma 11 år. Hilsen fra statsminister Erna Solberg. Hilsen fra Jennifer Brea, grunnlegger av MEAction og regissør av Unrest, Pasient appell: Kristine Ruud Berdal, Faglig appell: Professor Ola Didrik Saugstad, Hilsen fra overlege Øystein Fluge og professor Olav Mella, Pårørende appell: Eirin Sund leser utdrag fra tekst skrevet av Mette Schøyen, Hilsen fra professor Ron Davis.

Facebook : https://www.facebook.com/Millionsmissingstavanger/videos/287318042209458/

Les mer: «Jeg møtte et sykt mørke» av Kristine Schøyen Berdal (33), ME-rammet

MillionsMissing Stavanger 12mai2018

Appeller ved: pårørende Karin E. Wattum, professor Ola Didrik Saugstad, pasient Sissel Sunde, lest av Brit Christin Nymann Aarre, Konferansier: Eirin Sund, Musikk: Fredrik Sele

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MillionsMissing Oslo 12mai2019

Utstilling av pasienters sko sammen med en personlig hilsen. Alvorlig dårlige ME pasienter er for syke til å kunne delta fysisk, på denne måten deltar de sammen med oss allikevel.

.Facebook, video: https://www.facebook.com/Millionsmissingnorway/videos/2270533009863654/

Appeller fra stortingspolitiker Tuva Moflag Ap i Helse og omsorgskomiteen, generalsekretær i Norges ME forening Olav Osland, MEsquaden om «tapt ungdom», ME foreldrene, Bli_MEd om «viktigheten av åpenhet», pasienter og pårørende. Helsepartiet v /Lise Askvik. Innslag musikalsk v/Anette Gilje, Camilla Lunde og diktlesning v/Svein Tindberg

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MillionsMissing Trondhjem 11mai2019

.Facebook, video: https://www.facebook.com/308605709618394/videos/473543486722432/


En helsepolitisk biomedisinsk ME-konferanse på Stryn, 26 og 27 mars 2019

.Hjemmeside m/program, referater, presentasjoner mm.

En helsepolitisk biomedisinsk ME-konferanse på Stryn 2016

Omtale, blogg: På ME-fronten: «Referat i fra ME-konferanse, Stryn 12-13 april 2016»


Den årlige svenske Riksforeningen for ME-pasienter (RME) konferanser i oktober.

2015 – «De osynliga – en konferens om svår ME/CFS och vägen framåt»

Den svenske Riksforeningen for ME-pasienter (RME) arrangerte 19 oktober 2015 konferense med navn «De osynliga – en konferens om svår ME/CFS och vägen framåt» eller «The Invisible Ones – A Conference on Severe ME/CFS and the Way Forward».

Se presentasjonene i bloggpost: På ME-fronten: Delta på «The Invisible Ones – A Conference on Severe ME/CFS and the Way Forward» okt 2015.

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2016 – När livet går förbi:

Den årlige konferansen for sykdommen Myalgisk Encefalopati/kronisk utmattelsessyndrom i Sverige for alle leger, forskere, tverrfaglige helsearbeidere, pasienter og pårørende i oktober 2016]. Den svenske Riksforeningen for ME-pasienter (RME) arrangerte to konferanser/seminar med tittel «När livet går förbi» i henholdvis Umeå 19. og i Stockholm 20 oktober 2016. Presentasjonene ligger nå på Youtube i fra Stockholm.

Se presentasjonene i denne bloggposten: «På ME-fronten: Presentasjoner i fra Den svenske Riksforeningen for ME-pasienter (RME) konferanse i oktober 2016«.

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.2017 –  Utmattning ända in i cellen, Kardinalsymtom, biomarkörer och möjlig behandling

Onsdagen den 18 oktober 2017 i Stockholm, torsdagen 19 oktober 2017 i Malmö.

ME/CFS Biomarkers in the Cerebrospinal Fluid, Professor Jonas Bergquist, Uppsala Universitet

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Neuroradiology studies of ME/CFS, Doktor Per Julin, Stora Sköndal

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Anomalous microbiome and metabolic profiling in ME/CFS-patients. Professor Maureen Hanson, Cornell University, USA. Klicka här för att se Maureens Power Point-presentation.

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.Panel discussion around resent findings in the ME/CFS field,
Per Julin, Jonas Berquist, Geraldine (Jo) Cambridge, Maureen Hanson

Här kan du se konferensen från Malmö – Del 1, Del 2

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.2018 – Step By Step

Onsdag 17 oktober 2018 i Stockholm og 18 oktober 2018 i Göteborg

Neuroinflammatoriska förklaringsmodeller för ME/CFS. Professor Jonas Bergquist, Uppsala universitet

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Immunometabolism och ME/CFS. Proffesor Anders Rosén, Linköpings universitet

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Analysis of the Rituximab study and other immunological findings. Dr. Ingrid G Rekeland & Prof. Øystein Fluge from Bergen University

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Post Exertional Malaise in ME/CFS patiens. Physician & researcher Katarina Lien of Oslo University Hospital

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Klinisk verksamhet och forskning vid ME-center, Bragée-kliniken. Dr Björn Bragée, MD & Dr Bo Bertilson MD, PhD

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2019 – kommer snart

Stockholm; 16 oktober 2019 og Umeå; 17 oktober 2019.

För tolfte året i rad samlar vi aktuella och internationellt erkända ME/CFS-forskare, som berättar om de senaste framstegen och mest lovande resultaten.

Årets ME/CFS-dagar fokuserar på hur sjukdomen påverkar hjärnan och immunförsvaret samt, inte minst, på klinisk verksamhet.

Les mer her.
Youtube-presentasjoner samlet, se her.


Norges Myalgisk Encefalopati Forening – ME-foreningen

Hjemmeside, her.
Facebookside, her.
Youtube, her.

ME-foreldrene; forening av og for pårørende til ME-syke barn og unge – og for de unge selv.
Hjemmeside, her.
Facebookside, her.

Noen utvalg:

ME-foreningens åpne fagdag i Oslo 27 november 2018.

Foredrag av Professor Benedicte A. Lie, Avdeling for medisinsk genetikk, Universitetet i Oslo: «Genetiske undersøkelser for å avdekke immunapparatets rolle ved ME«. ME-foreningens åpne fagdag i Oslo 27 november 2018.

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Professor Karl Johan Tronstad, Institutt for biomedisin, Universitetet i Bergen: «Skyldes ME/CFS energisvikt i kroppens celler?». ME-foreningens åpne fagdag i Oslo 27 november 2018.

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Professor i journalistikk og folkehelse David Tuller, School of Public Health, University of California, Berkeley: «The PACE Trial: ”Thing of Beauty” or Piece of Crap?«. ME-foreningens åpne fagdag i Oslo 27 november 2018.

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Barn og unge med ME

Barn og unge med ME, 12 august 2019. Psykologspesialist Ketil Jakobsen og barnenevrolog Kristian Sommerfelt. Psykologspesialist Ketil Jakobsen har lang erfaring med barn og unge med ME. I denne videoen snakker han med barnenevrolog Kristian Sommerfelt om sin tilnærming.

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Barnenevrolog Kristian Sommerfelt, 17mai2017. «Kognitive vansker hos barn og unge med ME.». Kognitive vansker som problemer med korttidsminnet, ordleting og konsentrasjonsvansker er en det av symptombildet ved ME. Mange pasienter opplever disse vanskene som svært hemmende. I denne videoen snakker barnenevrolog Kristian Sommerfelt om hvordan dette arter seg hos barn og unge med ME, og hvordan man best kan leve med disse plagene.

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Videointervju med barnenevrolog dr. med. Kristian Sommerfelt. 27apr2017. «Barn og unge med ME, utredning, oppfølging og prognose«.

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Prof. Ola Didrik Saugstad

På ME-fronten: Foredraget «Nytt lys på ME – et innblikk i ME forskningen» av Prof. Ola Didrik Saugstad 23 sept 2015.

. foredraget med Ola Didrik Saugstad fra 9. August 2018 i Danmark.


Invest in ME Research 31 mai 2019

For de siste 14 årene har den engelske veledighetsorgansisasjonen Invest in ME, pårørende hvis barn ble rammet av sykdommen Myalgisk Encefalopati (ME), arrangert en internasjonal konferanse for forskere, helsepersonell, pårørende og pasienter. Dette har de siste 14-årene også vært årets event hvor forskere innen biomedisin samles.

Dette året, 31 mai 2019, ble alle presentasjonene i fra Invest in ME Research lagt ut vederlagsfritt på YouTube.

Dr Elizabeth R.Unger of CDC. ME Research Update at Centres for Disease Control, USA.

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Dr Vicky Whittemore from National Institutes of Health. ME Research Update at National Institutes of Health, USA.

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Professor Maureen Hanson. Department of Molecular Biology and Genetics, Cornell University, New York, USA. Immune dysregulation in ME/CFS.

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Associate Professor Mady Hornig.Columbia University Mailman School of Public Health, New York, USA. Fingerprinting the Phenotypes of ME/CFS Along the Gut-Immune-Brain Axis.

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Don Staines MBBS, MPH, FAFPHM, FAFOEM. National Centre for Neuroimmunology and Emerging Diseases (NCNED), Griffiths University, Australia. Transient receptor potential ion channels in the aetiology and pathomechanism of CFS/ME.

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David Andersson PhD. Andersson Lab, Kings College London, UK. Pathophysiological Basis of Fibromyalgia.

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Jesper Mehlsen MD. Bispebjerg Hospital, Copenhagen, Denmark. Characteristics and Pathophysiological Changes in a Large Cohort of Danish ME-patients.

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Stuart Bevan PhD. Wolfson Centre for Age-Related Diseases, Kings College London, UK. Pain and ME/CFS
The Anne Örtegren Memorial Lecture 2019 Remembering the influence of Anne Örtegren.

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The IIMEC13 Anne Örtegren Memorial Lecture by Professor Theoharis C Theoharides of Tufts University, Boston, USA. This video also contains a tribute to Anne Örtegren from Invest in ME Research and Professor Jonas Blomberg of Uppsala University in Sweden.

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Simon Carding PhD. Quadram Institute Bioscience, Norwich Research Park, UK.ME Research Developments at Quadram Institute.

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Øystein Fluge MD, PhD. Haukeland University Hospital, Bergen, Norway. Rituximab in ME/CFS: a randomised, double-blind and placebo-controlled trial.

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Karl Johan Tronstad PhD. Haukeland University Hospital, Bergen, Norway. Metabolic profiling and associations to clinical data in ME.

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Nancy Klimas MD. Director Institute for Neuro Immune Medicine, Nova Southeastern University , USA. Integrative Medicine Approach to Treatment of ME.

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Ron Tompkins MD, ScD. Director of the Center for Surgery, Science and Bioengineering, Massachusetts General Hospital, USA. Harvard Plans for Clinical Research into ME/CFS.

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Michael VanElzakker PhD. Massachusetts General Hospital/Tufts University, USA. Ongoing study of physiological and fMRI measures before/after symptom provocation by invasive cardiopulmonary exercise testing.

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Ron Davis PhD. Professor of Biochemistry and Genetics at the Stanford School of Medicine in Stanford, California, USA. Establishing new mechanistic and diagnostic paradigms for ME/CFS.

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Panel. Summary Plenary Session.

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Presentation at the 13th Invest in ME Research International ME Conference in London on 1st June 2018, from Professor Ron Davis of Stanford.

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The #IIMEC12 Pre-Conference presentation from David Tuller prior to the 12th Invest in ME Research International ME Conference 2017 in London.

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Professor James Baraniuk‘s presentation at the 11th Invest in ME Research International ME Conference 2016 in London. Exercise testing and Orthostatic Tachycardia.

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UK charity Invest in ME Research 11th International ME Conference 2016 – IIMEC11 Pre-Conference Dinner Keynote Speech Kjersti Krisner


Open Medicine Foundation (OMF) Symposium, Stanford 19aug2017

.Community Symposium on the Molecular Basis of ME/CFS at Stanford University. Sponsored by OMF. 19 august 2017.

Hjemmeside, OMF.
Facebook, OMF.
Youtube, OMF.

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Robert K. Naviaux, MD, PhD, University of California, San Diego. The metabolism of the cell danger response, healing, and ME/CFS. Keynote Speech

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Chris Armstrong, University of Melbourne. ME, metabolism and I.

Les mer, transskript mm: Chris Armstrong presentasjon at OMF Symposium Stanford 19aug2017.

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Jonas Bergquist, MD, PhD, Uppsala University. In search of biomarkers revealing pathophysiology in a Swedish ME/CFS patient cohort.

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Maureen Hanson, PhD, Cornell University. Probing metabolism in ME/CFS.

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Neil McGregor, MDSc, PhD, University of Melbourne. Genome-wide analysis & metabolome changes in ME/CFS.

Les mer, transkript mm: Dr Neil McGregor presentasjon ved OMF Community Symposium Stanford 19 august 2017.

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Alan Light, PhD, University of Utah. Gene variants, mitochondria & autoimmunity in ME/CFS.

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Panel Discussion – Morning Speakers.Q&A Panel Discussion 1

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Baldomero Olivera, PhD, Howard Hughes Medical Institute and University of Utah. A novel source of drugs: the biodiversity of oceans.

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Mario Capecchi, PhD, Nobel Laureate, University of Utah. The role of microglia in neuropsychiatric disorders.

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Mark Davis, PhD, Howard Hughes Medical Institute and Stanford University. Is CFS/ME an autoimmune disease?.

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Alain Moreau, PhD, University of Montreal. New research strategies for decoding ME/CFS to improve diagnosis and treatment.

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Wenzhong Xiao, PhD, Massachusetts General Hospital and Harvard Medical School. Big data analysis of patient studies of ME/CFS

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Ronald W. Davis, Stanford University. Establishing new mechanistic and diagnostic paradigms for ME/CFS.

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Panel Discussion – Afternoon Speakers. Q&A Panel Discussion 2 & Closing Remarks.

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Open Medicine Foundation (OMF) Symposium, Stanford 29sept2018

.Second Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University. sponsored by the Open Medicine Foundation (OMF). 29 september 2018 at Paul Brest Hall, Stanford University.

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Øystein Fluge, MD, PhD, University of Bergen. Clinical trials and metabolic features of ME/CFS. Keynote Speech.

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Wenzhong Xiao, PhD, Massachusetts General Hospital, Harvard Medical School. Results from the Severely Ill Patient Study (SIPS).

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Jonas Bergquist, MD, PhD, Uppsala University. The neuroimmune route in ME/CFS.

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Alain Moreau, PhD, University of Montreal. Deciphering MicroRNAs code in ME/CFS pathogenesis: Lessons from a complex disease.

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Maureen Hanson, PhD, Cornell University. Metabolism and ME/CFS.

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Panel Discussion: Morning Speakers. Q&A Panel Discussion 1.

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Ron Tompkins, MD, ScD, Harvard University. ME/CFS Collaborative Research Center at Harvard: Metabolic lessons learned from injury and trauma.

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Michael Sikora, Stanford University. Sequencing clonally expanded T cells in ME/CFS

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Jarred Younger, PhD, University of Alabama at Birmingham. How brain inflammation causes ME/CFS

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Ronald W. Davis, PhD, Stanford University. Biomarkers

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Robert Phair, PhD, Integrative Bioinformatics Inc. Metabolic Traps: A new way to think about ME/CFS (including the first experimental results)

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Ronald W. Davis, PhD, Stanford University. What’s next?

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Panel Discussion: Afternoon Speakers. Q&A Panel Discussion 2.


Harvard ME/CFS Symposium 8 juni 2019

.Finding Clarity: The Inaugural Harvard ME/CFS Collaboration Symposium.

.The Harvard ME/CFS Collaboration 2019 Public Symposium will follow a one-day scientific meeting with more than 30 researchers. Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, co-directors of the OMF-funded Harvard ME/CFS Collaboration at Harvard Affiliated Hospitals have assembled a stellar team of researchers for both the scientific meeting and the public day. Lørdag 8 juni 2019,  Somerville, Massachusetts. Oppsummering/Chris Armstrong.

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Linda Tannenbaum and Ron Tompkins. Introduction to the Harvard Collaboration;

OMF CEO/President Linda Tannenbaum and Ron Tompkins, MD, ScD, of Harvard University gave the opening remarks at the The Inaugural Harvard ME/CFS Collaboration Symposium sponsored by Open Medicine Foundation (OMF). Dr. Tompkins is a member of OMF’s Scientific Advisory Board and the Co-Director of the OMF Collaborative Research Center at Harvard Medical School & Affiliated Hospitals.

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Systrom kunne ikke delta, så dette er ett tidligere intervju fra 2jul2018.

David M. Systrom, MD, Brigham and Women’s Hospital: Advancements in ME/CFS Research, 2 juli 2018 (ME/CFS Alert 98)

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Clinician Panel Discussion on ME/CFS – Donna Felsenstein, Anthony Komaroff og Amel Karaa. Clinical aspects of ME/CFS and potential therapies; Clinical needs for ME/CFS.

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Ron Davis. Stanford Experiences with ME/CFS; Update Stanford activities.

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Michael VanElzakker. Neurology of ME/CFS; Neuroinflammation imaging.

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Maureen Hanson. Immune System Function of ME/CFS; Immune dysregulation in ME/CFS.

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Wenzhong Xiao. Open Data Sharing Platform.

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Ron Tompkins, Linda Tannenbaum. Summary & Wrap-up.


Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019

Emerge Australia Inc. is hosting this international research symposium on ME/CFS supported by funding from the Australian Government Department of Health. «ME/CFS – The biomedical basis, diagnosis, treatment and management

Emerge Australia, hjemmeside.
Emerge Australia,facebook.
Emerge Australia, Youtube.

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Dag 1, 13mars2019, Scientific programme: Mitochondrial function and signalling, Immunology, Neuroimaging, Biobanking & Clinical Data

Professor Paul Fisher, LaTrobe University, Australia: Specific mitochondrial respiratory defects and compensatory changes in immortalised ME/CFS patient lymphocytes (includes Q&A)

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Professor Sonya Marshall-Gradisnik & Professor Donald Staines, NCNED, Griffith University, Australia: Immunological and calcium signalling for defining Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

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Dr Travis Craddock, Nova South Eastern University, USA: From gene expression to multisystem regulation: identifying optimal treatment courses for complex chronic illnesses (includes Q&A)

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Professor Geraldine Cambridge, University College of London, UK: Abstract Presentation – Differences between immunophenotype of B-cells from healthy controls and patients with ME/CFS persist following in vitro culture and correlate with energy metabolism.

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Dr Leighton Barnden, NCNED, Griffith University, Australia: Brain stem myelination and MRI changes in CFS/ME.

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Dr Elisha Josev, Murdoch Children’s Research Institute, Australia : Mapping fatigue in the brain in paediatric chronic fatigue syndrome.

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Dr Luis Nacul,London School of Hygeine & Tropical Medicine, UK: Infrastructure & Translational Research in ME/CFS: the Experience of CureME & the UK ME/CFS Biobank

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Professor Brett Lidbury, Australian National University: Rethinking diagnostic reference intervals for ME/CFS via machine learning, and the utility of Activin B to assess symptom severity.

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Dag 2, 14mars2019, Scientific programme: Research Innovation, Big Data & Bioinformatics, Genomics and Proteomics, Metabolomics & Transcriptomics, Methodology, Computer Interaction and Collaboration.

Dr Ron Davis, Stanford University School of Medicine, USA:Establishing New Mechanistic & Diagnostic Paradigms for ME/CFS

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Dr Wenzhong Xiao, Harvard Medical School, USA: The severely ill patient study of ME/CFS

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Dr Robert Phair, Integrative Bioinformatics Inc, USA: Metabolic traps in ME/CFS

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Dr Ruud Raijmakers, Radboud University Medical Center, Netherlands: Transcriptome analysis of QFS and CFS in the Netherlands

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Dr Neil McGregor, University of Melbourne, Australia: An omic analysis of ME/CFS: an assessment of potential mechanisms

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Dr Alain Moreau, Université de Montréal, Canada: Role of stress-activated circulating microRNAs in ME/CFS pathophysiology

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Dr Jonas Bergquist, Uppsala University, Sweden:Targeted Molecular Diagnosis of ME/CFS – the Devil is in the Details.

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Dr Suzanne McDonald, University of Queesland, Australia: Using N-of-1 methods to identify patterns and predictors of ME/CFS symptom exacerbations

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Dr Ryan Kelly & Melissa Rogerson, University of Melbourne, Australia: ME/CFS research in human-computer interaction

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Dr Eliana Lacerda, London School of Hygeine & Tropical Medicine, UK: The European network on ME/CFS – how best to connect research and healthcare across Europe

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Dag 3, 15mars2019, Clinical Focus & Open Day including a Symposia Summary: Clinical Experience, Day 1 & 2 Symposia Report Back, Patient & Researcher Workshop.

Dr Mark Donohoe, Mosman Integrative Medicine, Australia: ME/CFS: Clinical Experience 1

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Dr Bruce Wauchope – Bedford Medical Clinic, Australia: ME/CFS: Clinical Experience 2.

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Dr Mark Donohoe, Dr Don Lewis, Dr Lisa McLindon-Smith, Dr Nicole Phillips: Clinical Q&A

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Daniel Missailidis, La Trobe University, Victoria University, Australia: Day 1 Report

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Dr Brett Lidbury, Australian National University ANU: Day 2 Report

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Keynote Speaker, Dr Ron Davis, Stanford University School of Medicine, USA: Establishing New Mechanistic & Diagnostic Paradigms for ME/CFS.

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Jarred Younger Research Update: Video Screening

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Patient Anna Kerr & Bloxas Design Architect Anthony Bloxas, Bloxas, Australia: Empathic design and ME/CFS: a conversation


NIH Conference: Accelerating Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 4-5 april 2019

National Institutes of Health (NIH), USA. NIH Clinical Center. Present high-quality science studies of ME/CFS to better understand the state of the science and help drive the field forward by identifying gaps and opportunities. Presentations should emphasize newer work or in some cases critical previous work that fits with current models of ME/CFS. Audience is expected to be scientists, clinicians, patients and other ME/CFS stakeholders.

Trans-NIH Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Working Group, hjemmeside.

«Accelerating Research on ME/CFS (Day 1)» 4 april 2019, at National Institutes of Health, USA. [NIH][Youtube]
«Accelerating Research on ME/CFS (Day 2)» 5 april 2019, at National Institutes of Health, USA. [NIH][Youtube]

Seperate filer hentet på [Youtube] av Ryan Carr (Tusen hjertelig takk for arbeidet, Ryan C!!!)
Forkortelser: the National Institute of Neurological Disorders and Stroke (NINDS), the National Institutes of Health (NIH)

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Walter Koroshetz, MD (NINDS). Accelerating Research on ME & CFS – Welcome Remarks.

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Lucinda Bateman, MD (Bateman Horne Center, Salt Lake City, Utah). «ME & CFS: Multisystem Illnesses: Invisible In Plain Sight«

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Robert Naviaux (University of California, San Diego (UCSD)): “Metabolic features of Chronic Fatigue Syndrome: Shared biology of Chronic Illness

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Oliver Fiehn, PhD (UC Davis): “Informatics tools for Investigating metabolic dysregulation in ME & CFS«

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Jonas Bergquist, MD, PhD, Uppsala University, Sweden: «The Biochemistry to Support the Evidence of Neuroinflammatory Involvement
in ME/CFS

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Jose Montoya (Stanford University): «Cytokine networks and HLA genetic susceptibility associated with ME/CFS and disease severity«

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Mark Davis, PhD, Howard Hughes Medical Institute and Stanford University: “Potentially important T cell activity in CFS/ME

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Derya Unutmaz (Jackson Labs): “Disturbance of the immune system during ME/CFS

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Maureen Hanson, PhD, og Alexandra Mandarano, Ph.D. Cornell University: “Immune System and Metabolism (Immunometabolism) in ME & CFS

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Nancy Klimas (NOVA SE). Provocation Studies; “Accelerating to Clinical Trials – Modeling to Predict Intervention

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David Systrom, MD (BWH/Harvard). Provocation Studies; “Pathophysiology and treatment of exertional intolerance in ME/CFS: insights from cardiopulmonary exercise testing

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Betsy Keller, PhD (Ithaca). Provocation Studies; “Exertion intolerance: What is the evidence telling us?

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Terri Wilder (#MEAction) moderator. Group and Audience Discussion and fighting the psychiatric stigmatization of ME & CFS.

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10 min per presentation; highlighting one area of ME/CFS treatment/practice that would complement others (minimal overlap), introduced by Dr. Sadie Whitaker (Solve ME/CFS).

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Lucinda Bateman Orthostatic Intolerance and WHO ICD-10 Coding’s of Dysautonomia’s and PoTS

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Susan Levine, MD «Mass Cell Activation Syndrome or Disorder (MCAS or D) and ME and CFS«. Mast cell activation syndrome and incidence; quick overview of biology, diagnosis, and treatment

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Jose Montoya, MD. Is there a role for anti-herpes therapy in ME/CFS?

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Daniel Peterson, MD. Precision medicine and artificial intelligence in the diagnosis and treatment of ME/CFS

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Peter Rowe, MD. Neurodynamic dysfunction in ME/CFS

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Audience Questions on ME and CFS with Clinician Panel; Komaroff, Montoya, Bateman, Rowe, Peterson, Levine

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NINDS Director Walter Koroshetz introducing NIH Director Francis Collins

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Brian Walitt (NINR): “Post-Infectious ME & CFS at the NIH (Oligoclonal Banding found in two patients)

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Sadie Whitaker (Solve ME/CFS) introducing Ian Lipkin (Columbia). «ME&CFS Overview, Bacteriome, Virome, Epigenetics, Serology»
Microbiome/Virome; “Center for Solutions for ME/CFS: 18 months in…

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Julia Oh, PhD. (Jackson Labs). Microbiome/Virome; «From metagenomes to therapeutics: decoding the interactome«

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Bhupesh Prusty (Wuerzburg). Microbiome/Virome; “Pathogenic alterations of mitochondrial dynamics: A working model for ME/CFS

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Ron Davis, PhD, Stanford University. New Technology for ME/CFS Research; The Molecular Basis of ME/CFS

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Jarred Younger, PhD, Director and Associate Professor University of Alabama, Birmingham (UAB). Imaging of the CNS and ME/CFS; “Neuroinflammation in ME/CFS”

The Neuroinflammation, Pain and Fatigue Laboratory at UAB [hjemmeside] [facebook]

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Mike VanElzakker, PhD (Harvard). Imaging of the CNS and ME/CFS; “Optimizing techniques for neuroimaging brainstem in ME/CFS during post-exertional malaise and neuroinflammation

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Peter Rowe, MD. (JHU). Orthostatic/Autonomic Disorders; “Orthostatic Intolerance in ME/CFS: Gains and Gaps”

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Anne Oaklander (MGH). Orthostatic/Autonomic Disorders; “Small Fiber Neuropathy; A Common Contributor”

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Tony Komaroff (Harvard): Summary of Conference «Summary of the NIH meeting… and reflections on how far we’ve come»

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Panel Discussion: Next Steps for ME/CFS Research (30 min) and Open Question/Answer with Panel (30 min). Panel: Joe Breen (NIAID), Vicky Whittemore (NINDS), Maureen Hanson (Cornell), Sadie Whitaker (SMCI), Jose Montoya (Stanford)


The ME Show with Gary Burgess

Gary Burgess intervjuer forskere, pasienter og andre relatert til sykdommen ME.

Unike episoder på podcast kan du høre her.

 

3 kommentarer om “Norske og internasjonale biomedisinske ME konferanser, seminarer og markeringer

  1. Tilbaketråkk: Amerikanske biomedisinske ME konferanser, seminarer og markeringer – ToTo NeuroImmunologisk Kurativ Behandling

  2. Tilbaketråkk: Monarkiske lands biomedisinske ME konferanser, seminarer og markeringer – ToTo NeuroImmunologisk Kurativ Behandling

  3. Tilbaketråkk: Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019 – ToTo NeuroImmunologisk Kurativ Behandling

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