Amerikanske biomedisinske ME konferanser, seminarer og markeringer

På ME-feltet: I løpet av de siste årene, har økende biomedisinsk forskningsaktivitet og dertil antall forskningskonferanser og seminarer økt for den nevrologiske sykdommen Myalgisk Encefalopati (WHO ICD-10 G93.3).

Presentasjoner som blir gitt er også en unik mulighet for å lære mere om ME, hva som forskers på, hvem forsker på, samt foreløbige funn, hypoteser og resultater og veien videre på forskningsfeltet.

Bare det siste året (er nå i slutten av august 2019) har det vært gjennomført minst ni biomedisinske forskningskonferanser/seminarer/markeringer med skarpt fokus på Myalgisk Encefalopati (ME, G93.3), hvor av hele tre internasjonale store flerdagers konferanser i hhv Australia, England og USA i første halvår av 2019.

Open Medicine Foundation (OMF) Symposium, Stanford 29sept2018; Den årlige svenske Riksforeningen for ME-pasienter (RME) konferanser, Stockholm 17oktober2018; ME-foreningens åpne fagdag i Oslo 27november2018; Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019; En helsepolitisk biomedisinsk ME-konferanse på Stryn, 26-27 mars 2019; National Institutes of Health (NIH) Conference: Accelerating Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 4-5 april 2019; ME-dagen 12mai markering; Invest In ME Research London 31mai2019 og Harvard ME/CFS Symposium 8juni2019.

Dette innlegget dekker en liten oversikt av konferanser, seminarer og markeringer i USA. I blogginnlegget 23aug2019: «Norske og internasjonale biomedisinke ME konferanser, seminarer og markeringer.», finner du en langt større oversikt. Siden innlegget er langt og tungt har jeg valgt å dele det opp i flere, som «Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019» og «Monarkiske lands biomedisinske ME konferanser, seminarer og markeringer» pr 23 august 2019.

Open Medicine Foundation (OMF) Symposium, Stanford 19aug2017

.Community Symposium on the Molecular Basis of ME/CFS at Stanford University. Sponsored by OMF. 19 august 2017.

Hjemmeside, OMF.
Facebook, OMF.
Youtube, OMF.

**

Robert K. Naviaux, MD, PhD, University of California, San Diego. The metabolism of the cell danger response, healing, and ME/CFS. Keynote Speech

**

Chris Armstrong, University of Melbourne. ME, metabolism and I.

Les mer, transskript mm: Chris Armstrong presentasjon at OMF Symposium Stanford 19aug2017.

**

Jonas Bergquist, MD, PhD, Uppsala University. In search of biomarkers revealing pathophysiology in a Swedish ME/CFS patient cohort.

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Maureen Hanson, PhD, Cornell University. Probing metabolism in ME/CFS.

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Neil McGregor, MDSc, PhD, University of Melbourne. Genome-wide analysis & metabolome changes in ME/CFS.

Les mer, transkript mm: Dr Neil McGregor presentasjon ved OMF Community Symposium Stanford 19 august 2017.

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Alan Light, PhD, University of Utah. Gene variants, mitochondria & autoimmunity in ME/CFS.

**

Panel Discussion – Morning Speakers.Q&A Panel Discussion 1

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Baldomero Olivera, PhD, Howard Hughes Medical Institute and University of Utah. A novel source of drugs: the biodiversity of oceans.

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Mario Capecchi, PhD, Nobel Laureate, University of Utah. The role of microglia in neuropsychiatric disorders.

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Mark Davis, PhD, Howard Hughes Medical Institute and Stanford University. Is CFS/ME an autoimmune disease?.

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Alain Moreau, PhD, University of Montreal. New research strategies for decoding ME/CFS to improve diagnosis and treatment.

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Wenzhong Xiao, PhD, Massachusetts General Hospital and Harvard Medical School. Big data analysis of patient studies of ME/CFS

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Ronald W. Davis, Stanford University. Establishing new mechanistic and diagnostic paradigms for ME/CFS.

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Panel Discussion – Afternoon Speakers. Q&A Panel Discussion 2 & Closing Remarks.

***

Open Medicine Foundation (OMF) Symposium, Stanford 29sept2018

.Second Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University. sponsored by the Open Medicine Foundation (OMF). 29 september 2018 at Paul Brest Hall, Stanford University.

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Øystein Fluge, MD, PhD, University of Bergen. Clinical trials and metabolic features of ME/CFS. Keynote Speech.

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Wenzhong Xiao, PhD, Massachusetts General Hospital, Harvard Medical School. Results from the Severely Ill Patient Study (SIPS).

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Jonas Bergquist, MD, PhD, Uppsala University. The neuroimmune route in ME/CFS.

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Alain Moreau, PhD, University of Montreal. Deciphering MicroRNAs code in ME/CFS pathogenesis: Lessons from a complex disease.

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Maureen Hanson, PhD, Cornell University. Metabolism and ME/CFS.

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Panel Discussion: Morning Speakers. Q&A Panel Discussion 1.

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Ron Tompkins, MD, ScD, Harvard University. ME/CFS Collaborative Research Center at Harvard: Metabolic lessons learned from injury and trauma.

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Michael Sikora, Stanford University. Sequencing clonally expanded T cells in ME/CFS

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Jarred Younger, PhD, University of Alabama at Birmingham. How brain inflammation causes ME/CFS

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Ronald W. Davis, PhD, Stanford University. Biomarkers

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Robert Phair, PhD, Integrative Bioinformatics Inc. Metabolic Traps: A new way to think about ME/CFS (including the first experimental results)

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Ronald W. Davis, PhD, Stanford University. What’s next?

**

Panel Discussion: Afternoon Speakers. Q&A Panel Discussion 2.


Harvard ME/CFS Symposium 8 juni 2019

.Finding Clarity: The Inaugural Harvard ME/CFS Collaboration Symposium.

.The Harvard ME/CFS Collaboration 2019 Public Symposium will follow a one-day scientific meeting with more than 30 researchers. Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, co-directors of the OMF-funded Harvard ME/CFS Collaboration at Harvard Affiliated Hospitals have assembled a stellar team of researchers for both the scientific meeting and the public day. Lørdag 8 juni 2019, Somerville, Massachusetts. Oppsummering/Chris Armstrong.

**

Linda Tannenbaum and Ron Tompkins. Introduction to the Harvard Collaboration;

OMF CEO/President Linda Tannenbaum and Ron Tompkins, MD, ScD, of Harvard University gave the opening remarks at the The Inaugural Harvard ME/CFS Collaboration Symposium sponsored by Open Medicine Foundation (OMF). Dr. Tompkins is a member of OMF’s Scientific Advisory Board and the Co-Director of the OMF Collaborative Research Center at Harvard Medical School & Affiliated Hospitals.

**

Systrom kunne ikke delta, så dette er ett tidligere intervju fra 2jul2018.

David M. Systrom, MD, Brigham and Women’s Hospital: Advancements in ME/CFS Research, 2 juli 2018 (ME/CFS Alert 98)

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Clinician Panel Discussion on ME/CFS – Donna Felsenstein, Anthony Komaroff og Amel Karaa. Clinical aspects of ME/CFS and potential therapies; Clinical needs for ME/CFS.

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Ron Davis. Stanford Experiences with ME/CFS; Update Stanford activities.

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Michael VanElzakker. Neurology of ME/CFS; Neuroinflammation imaging.

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Maureen Hanson. Immune System Function of ME/CFS; Immune dysregulation in ME/CFS.

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Wenzhong Xiao. Open Data Sharing Platform.

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Ron Tompkins, Linda Tannenbaum. Summary & Wrap-up.


NIH Conference: Accelerating Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 4-5 april 2019

National Institutes of Health (NIH), USA. NIH Clinical Center. Present high-quality science studies of ME/CFS to better understand the state of the science and help drive the field forward by identifying gaps and opportunities. Presentations should emphasize newer work or in some cases critical previous work that fits with current models of ME/CFS. Audience is expected to be scientists, clinicians, patients and other ME/CFS stakeholders.

Trans-NIH Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Working Group, hjemmeside.

«Accelerating Research on ME/CFS (Day 1)» 4 april 2019, at National Institutes of Health, USA. [NIH][Youtube]
«Accelerating Research on ME/CFS (Day 2)» 5 april 2019, at National Institutes of Health, USA. [NIH][Youtube]

Seperate filer hentet på [Youtube] av Ryan Carr (Tusen hjertelig takk for arbeidet, Ryan C!!!)
Forkortelser: the National Institute of Neurological Disorders and Stroke (NINDS), the National Institutes of Health (NIH)

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Walter Koroshetz, MD (NINDS). Accelerating Research on ME & CFS – Welcome Remarks.

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Lucinda Bateman, MD (Bateman Horne Center, Salt Lake City, Utah). «ME & CFS: Multisystem Illnesses: Invisible In Plain Sight«

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Robert Naviaux (University of California, San Diego (UCSD)): “Metabolic features of Chronic Fatigue Syndrome: Shared biology of Chronic Illness

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Oliver Fiehn, PhD (UC Davis): “Informatics tools for Investigating metabolic dysregulation in ME & CFS«

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Jonas Bergquist, MD, PhD, Uppsala University, Sweden: «The Biochemistry to Support the Evidence of Neuroinflammatory Involvement
in ME/CFS

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Jose Montoya (Stanford University): «Cytokine networks and HLA genetic susceptibility associated with ME/CFS and disease severity«

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Mark Davis, PhD, Howard Hughes Medical Institute and Stanford University: “Potentially important T cell activity in CFS/ME

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Derya Unutmaz (Jackson Labs): “Disturbance of the immune system during ME/CFS

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Maureen Hanson, PhD, og Alexandra Mandarano, Ph.D. Cornell University: “Immune System and Metabolism (Immunometabolism) in ME & CFS

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Nancy Klimas (NOVA SE). Provocation Studies; “Accelerating to Clinical Trials – Modeling to Predict Intervention

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David Systrom, MD (BWH/Harvard). Provocation Studies; “Pathophysiology and treatment of exertional intolerance in ME/CFS: insights from cardiopulmonary exercise testing

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Betsy Keller, PhD (Ithaca). Provocation Studies; “Exertion intolerance: What is the evidence telling us?

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Terri Wilder (#MEAction) moderator. Group and Audience Discussion and fighting the psychiatric stigmatization of ME & CFS.

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10 min per presentation; highlighting one area of ME/CFS treatment/practice that would complement others (minimal overlap), introduced by Dr. Sadie Whitaker (Solve ME/CFS).

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Lucinda Bateman Orthostatic Intolerance and WHO ICD-10 Coding’s of Dysautonomia’s and PoTS

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Susan Levine, MD «Mass Cell Activation Syndrome or Disorder (MCAS or D) and ME and CFS«. Mast cell activation syndrome and incidence; quick overview of biology, diagnosis, and treatment

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Jose Montoya, MD. Is there a role for anti-herpes therapy in ME/CFS?

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Daniel Peterson, MD. Precision medicine and artificial intelligence in the diagnosis and treatment of ME/CFS

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Peter Rowe, MD. Neurodynamic dysfunction in ME/CFS

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Audience Questions on ME and CFS with Clinician Panel; Komaroff, Montoya, Bateman, Rowe, Peterson, Levine

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NINDS Director Walter Koroshetz introducing NIH Director Francis Collins

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Brian Walitt (NINR): “Post-Infectious ME & CFS at the NIH (Oligoclonal Banding found in two patients)

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Sadie Whitaker (Solve ME/CFS) introducing Ian Lipkin (Columbia). «ME&CFS Overview, Bacteriome, Virome, Epigenetics, Serology»
Microbiome/Virome; “Center for Solutions for ME/CFS: 18 months in…

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Julia Oh, PhD. (Jackson Labs). Microbiome/Virome; «From metagenomes to therapeutics: decoding the interactome«

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Bhupesh Prusty (Wuerzburg). Microbiome/Virome; “Pathogenic alterations of mitochondrial dynamics: A working model for ME/CFS

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Ron Davis, PhD, Stanford University. New Technology for ME/CFS Research; The Molecular Basis of ME/CFS

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Jarred Younger, PhD, Director and Associate Professor University of Alabama, Birmingham (UAB). Imaging of the CNS and ME/CFS; “Neuroinflammation in ME/CFS”

The Neuroinflammation, Pain and Fatigue Laboratory at UAB [hjemmeside] [facebook]

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Mike VanElzakker, PhD (Harvard). Imaging of the CNS and ME/CFS; “Optimizing techniques for neuroimaging brainstem in ME/CFS during post-exertional malaise and neuroinflammation

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Peter Rowe, MD. (JHU). Orthostatic/Autonomic Disorders; “Orthostatic Intolerance in ME/CFS: Gains and Gaps”

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Anne Oaklander (MGH). Orthostatic/Autonomic Disorders; “Small Fiber Neuropathy; A Common Contributor”

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Tony Komaroff (Harvard): Summary of Conference «Summary of the NIH meeting… and reflections on how far we’ve come»

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Panel Discussion: Next Steps for ME/CFS Research (30 min) and Open Question/Answer with Panel (30 min). Panel: Joe Breen (NIAID), Vicky Whittemore (NINDS), Maureen Hanson (Cornell), Sadie Whitaker (SMCI), Jose Montoya (Stanford)


2 kommentarer om “Amerikanske biomedisinske ME konferanser, seminarer og markeringer

  1. Tilbaketråkk: Monarkiske lands biomedisinske ME konferanser, seminarer og markeringer – ToTo NeuroImmunologisk Kurativ Behandling

  2. Tilbaketråkk: Emerge Australia ME/CFS International Research Symposium 13-15 mars 2019 – ToTo NeuroImmunologisk Kurativ Behandling

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